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Old 12-06-2017, 09:38 PM   #1
Thalassophile
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Default Neurofeedback Therapy

Has anyone tried neurofeedback therapy? If so how did you find it? Have been reading about some of its successes in relation to those with PTSD and find it interesting.
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Old 12-14-2017, 12:36 PM   #2
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I have! My longtime T actually got all trained up, got the equipment and everything in her quest to help me. We were running into a lot of trouble in sessions due to my severe dissociation. My T actually consulted with Sebern Fisher (she's a well-known neurofeedback expert) about my case We had to try a lot of different protocols and tweak different things, but I do think it helped me. We found that I received the best results lying on the couch with my eyes closed - so not watching the visuals, just hearing the audio feedback. The results weren't immediate or obvious to me during the treatment. However, post-neurofeedback, my disruptive symptoms had improved. The frequency that I dissociated into unresponsiveness decreased. I was more able to talk about traumatic things.

I can't be sure that it was the neurofeedback that achieved these results, as it might have been just the time spent resting in my T's calm presence. However, there were many times that my T would show me a number on the screen, and tell me she wanted me to try to decrease it. Almost immediately, the number would go down. That really showed me how I could affect my brain waves via training, so I think the premise behind neurofeedback is quite promising - I would like to see a lot more research done on it. I definitely found it more helpful than EMDR, which rarely seemed to do anything for me. Unfortunately, my longtime T told me she's pretty much done with neurofeedback recently. I don't know why. Maybe I should tell her next time I'm home that I find neurofeedback far superior to EMDR...

Just let me know if you have any specific questions and I'll do my best to answer them!
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Old 03-21-2018, 10:54 PM   #3
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i have done NFB and even have my own system that i use at home. i did my NFB in conjunction with my talk therapy (but my primary therapist was not the one administering the NFB).

similar to fille_folle i was struggling with severe dissociation that was hindering my progress in therapy, especially, the relationship with my then therapist (there were a lot of transference/counter transference issues going on between us that seemed to stall the therapy). the NFB helped to calm my emotional dysregulation and once that happened, i was able to focus on the therapy and my goals without constantly 'being stuck' in the emotional turmoil that the therapy/relationship seemed to always trigger. NFB was successful in helping to calm many of my core anxieties and fears. after doing NFB regularly for just over a year, i felt stable and secure enough to finally end an almost 6 year therapy relationship. i have been out of therapy for a year now and have no plans to return.

i was following Sebern Fishers protocols in her book :
Neurofeedback in the Treatment of Developmental Trauma | Sebern Fisher

She trains many Ts in NFB, including the clinical T who i sought NFB from. i even had the opportunity to meet her when i attended a training session she offered at my clinical Ts practice. she definitely understands complex and developmental trauma better than anyone else i have ever met.
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Old 05-07-2018, 12:09 AM   #4
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Default Re: Neurofeedback Therapy

I have started for my depression. Only 4 sessions in.
They have to treat me 10 sessions before transferring the sensors to the depression site.
Still the same as of now. Although on my second session I was motivated and optimistic.
We shall see . Im hoping for the best.
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Old 05-14-2018, 04:46 AM   #5
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wellshii, hope you experince positive results
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Old 05-15-2018, 05:41 PM   #6
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I haven't done it but my care manager was just talking about it. She said her son did it and it really helped his anxiety.
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Old 05-17-2018, 05:23 AM   #7
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Quote:
Originally Posted by 88Butterfly88 View Post
I haven't done it but my care manager was just talking about it. She said her son did it and it really helped his anxiety.
i truely wish more people knew about it and had better access or the opportunity to at least try it.
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Old 08-02-2018, 09:29 AM   #8
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This thread is a little old, but I'm glad that I found it!

I heard a NFB practitioner speak this weekend, and it was fascinating. I'm going in this afternoon for my scan!

One of the things that I really liked is that she tells you people to NOT tell her anything about their symptoms or diagnosis before the scan. She wants to scan your brain, analyze the patterns, then come back (2nd appointment) and tell you what she thinks is going on. It's a really cool way to validate whether or not the NFB is picking up on the right things. If she knew ahead of time what issues you have, it would be easy to just point to things and say, "oh yeah, here's what's causing your anxiety" for example.

Anyway, I'm excited. It seems like there's some controversy (i.e. some people think it hasn't been validated) but I think it's worth trying. The risks of side effects appears to be so much lower than with medication.

I'm so exhausted right now, all the time. And, I've tried so much therapy - to no avail. I don't ever seem to be able to get to a place where therapy is helpful, and when Ts push too hard, I get worse. So, fingers crossed that this helps!
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Old 08-03-2018, 08:12 PM   #9
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Quote:
Originally Posted by guilloche View Post
I heard a NFB practitioner speak this weekend, and it was fascinating. I'm going in this afternoon for my scan!
that's fantastic! when i got my initial NFB assessment (scan) it was incredibly validating. my NFB clinician had picked up on many of my issues that i had spent years with my talk T trying to describe or even believe. i cried when he gave me the results of the assessment because it was not only a relief to know that the symptoms i had were actually real and that there was a valid reason for them, but he reassured me that he could help to ease many of my symptoms with the NFB. it brought back a sense of hope when almost all hope was gone that i could ever get better or live a happier life.

i hope you will post an update.
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Old 08-06-2018, 09:56 PM   #10
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Thanks Koru_Kiwi. I go back Thursday afternoon to get the results.

I'm a little nervous. I was *so* tired, and I think that part of that is that I've been working to give up junk food/sugars. I was about a week in, and expected to feel better - but my brain was just *exhausted*, to the point that when I came home and tried to finish up some stuff for work, I couldn't really focus at all. I was writing sentences and leaving out phrases (and not realizing until I reread them), and I meant to copy a section of what I was writing to edit it (it was a second item), but I overwrote it instead, without realizing, and then had to rewrite it. It was pretty terrible.

She asked me if I was exhausted when we were getting started (as part of the setup, checking to make sure it was OK to run the test... with other questions like whether you're on medication, if you've eaten today, alcohol/caffeine use, etc.) I told her that I was tired and about the sugar issues, so hopefully she can account for that. But, I didn't realize *how* tired I was, until I got home and tried to work. Yikes.

It was also weird, in the sense that, it felt like the environment was different enough from day-to-day life, that I didn't feel like my brain was behaving the way it normally would. She understood though, and said that's normal, and that really she's just looking for patterns, which tend to be consistent, even when the situation is weird.

So, we'll see!

My testing had 5 sets of 3 tasks. The first task was always to sit for a minute with my eyes closed, and the second was always to sit with my eyes open (trying to look at one point). The third one varied, and we did these:

- Listen to the person read a paragraph for one minute. After the minute (when the machine was off) - give a short summary of what she read. (I think most of us can do this easily, but again, since it was a "test" environment, my brain was on hyper-crazy-overdrive! I don't normally listen like that. It wasn't even that I was intently listening, it's that my brain was bouncing around, trying to remember every word of what she was saying, trying to create the summary as she was talking... very weirdly unfocused.)

- I also had to read a paragraph on a screen (for one minute), then summarize once the machine was off.

- She read a sequence of numbers, and I had to repeat them back. This one was weird. Since I was talking with the machine on, and you want to minimize muscle movement, I had to sort of "mumble" the numbers while keeping my mouth as still as possible. I felt like I was drunk or half-asleep lol. So, when we got to my last string (as many numbers as I could remember and get right)... I got halfway through, then literally mumbled something like, "uhhh, i dunno"... halfheartedly, lol. I think I might have tried harder if I weren't exhausted and weren't mumbling, the mumbling made me feel a bit unintelligent.

- I was supposed to spend a minute thinking about some future, positive change that I expected... it had to be in the future, positive, about me, and I had to mentally experience it. I think I can do this OK normally, but I feel like it was really hard in the test setting. I suspect my brain is not going to look very competent at imagining a happy future !

- And, omg! This one was terrible. I had to look at a passage on a screen and count the number of times the letters "t" "h" and "e" occurred together. It could be as the word "the", but also in any words, so like the word "other" would count. If I got to the end (during the minute), I had to go back and recount and see if they could match up. I couldn't - my mind kept getting pulled in to reading the words. The first time through I only found ONE! Then, I skipped around, found another, and another... but I had no confidence in my final answer (which was, "err... 4 or 5, maybe?").

The person doing the testing was really nice, funny, and smart. So I enjoyed talking with her and didn't feel too awful about the testing. She mentioned that we're not testing "executive function" - the test is really NOT about getting the right answer, it's about watching what your brain does as you try to get the right answer

But, I still worry that maybe my test is going to be adversely affected by level of exhaustion... crazy work stuff right now is not helping, I probably should have scheduled it out a couple weeks, to get my through the insanity at work!

Probably more than anyone wanted to know, but it really is kind of fascinating. I'm hoping it can help - but not sure how I'll be able to manage the time away from work (plus regular therapy appointments that I have to leave work for). Argh!
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