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Old 10-09-2018, 12:50 PM   #1
-jimi-
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Default What do I do for pain?

I have Lupus/Sjogrens and my illness shifts over the years. Now it is back where it was 15 years ago, with pain. And stiffness now as a new fancy thing. Had this new variant a few years now. I do my physio/yoga almost daily and it does help, but some days not enough.

I want to go out walking but after a while I just hurt so bad. It takes the fun out of walking. I hate that I can't walk as much as I want to.

I can if I take pain meds but I'm not allowed anything that really helps. I've never been accused of abusing drugs or anything like that, it is just that docs think I exaggerate my pain because I walk sort of normally even with pain. I more cry on the inside.

As a bit older I was taught as a child to ignore pain so I don't have a good way of showing pain. I guess docs don't understand words?

I'm thinking of buying pain meds illegally. Not saying I'm gonna, but I feel so trapped and I have a lot of physical labor to fix this fall and I can't see how I can manage without pain relief. My doc thinks Tylenol works for everything.
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Old 10-14-2018, 11:09 PM   #2
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Have you tried CBD/Hemp oil. It has helped my arthritis.
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Old 10-15-2018, 02:36 PM   #3
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Some docs try anti-epileptic drugs for pain: gabapentin, Lyrica, etc. Have you tried those?

I also use a topical, called Penetrex, avail. at Walmart, penetrex.com or Amazon. It is arnica and other ingredients. Has really helped nerve pain in my feet.

Are you able to take NSAIDS, like Aleve (naproxen sodium) or ibuprofen? These can help inflammatory pain.

I am so very sorry you are in pain and feel your doc is not really hearing you!


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Old 10-15-2018, 02:46 PM   #4
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Braces, wraps, supports? Where does it hurt?
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Old 10-18-2018, 07:52 PM   #5
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Back, muscle pain mostly I think, knee joints, toe joints, stiff all over like fingers also.

Hemp oil is illegal, can't tolerate any anti-seizure med but yea I take Naproxen when I really need to. I have to be careful though since my esophagus is very raw and I can't take any stronger antacids.

The yoga and physio still helps the most. I shouldn't complain, people have it worse. I just miss walking, after a while my back starts locking up.
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Old 10-19-2018, 01:10 PM   #6
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Quote:
Originally Posted by -jimi- View Post
Back, muscle pain mostly I think, knee joints, toe joints, stiff all over like fingers also.

Hemp oil is illegal, can't tolerate any anti-seizure med but yea I take Naproxen when I really need to. I have to be careful though since my esophagus is very raw and I can't take any stronger antacids.

The yoga and physio still helps the most. I shouldn't complain, people have it worse. I just miss walking, after a while my back starts locking up.
I remember talking to you on the food threads here a lot, so i looked back there to see what you were doing now, because my first instinct was to ask what your diet was. Have you tried cutting out the milk? I pretty much have, and i think im feeling better. I do try to have two servings of veg per day, and two of fruit. The rest is tuna and candy. J/k, i wish! But pretty close!
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Old 10-21-2018, 04:08 PM   #7
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Yup, I tried living gluten and dairy free for several months. Nothing happened. I eat a lot of vegetables.
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Old 10-26-2018, 11:33 AM   #8
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I was out walking when I got stiff. It usually happens in the morning after lying down or after long walks. I found a bench and I did my yoga/physio, the fast acting stuff. A guy came and looked at me strangely.

LMAO! But I am thankful for that bench. In the summer one can lie in the grass.

I think if I had worn sportswear it would have been fine but I dress skater style, very city slacker oriented.
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Old 10-26-2018, 01:10 PM   #9
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Have you tried any natural remedies? Circumin (nutmeg extract) is effective for some conditions. I have taken it for arthritis pain and it does reduce pain, and inflammation which often is associated with joint issues. I've also recently discovered the benefits of pineapple. Do some research. After all, natural medicines were used way before man made drugs.

PM me if I can help. I've researched a lot of these things.
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Old 10-26-2018, 02:37 PM   #10
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I used to be a "witch" but these days there are even more remedies.

I have tried a few and a few not. I got my hands on some emergency Tramadol. Feels good because then I can use them worst case. I don't use strong meds on a regular basis but it feels safe to have in case I promised to help with something one day and that day just happens to be a bad pain day.

So I am a little bit happier now.

I was gonna do ant therapy this summer but the ants had a hard time, we had a very weird summer, so I didn't wanna disturb them
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