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Unread 06-19-2017, 11:23 AM   #321
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Default Re: The Fibromyalgia check in thread #3

Gus, I, too, am keeping you in my thoughts and prayers. I'm so sorry things are bad right now.

Liz, I hope you feel better very soon.

Kiya, I'm right there with you on the slug route!

Love to all!
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Unread 06-19-2017, 10:48 PM   #322
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Default Re: The Fibromyalgia check in thread #3

Hi guys the last couple of days it's been about 100 degrees here. My house does not have A/C and inside it got to be 92 degrees. I just wanted to cry. The heat is very bad for people with lupus.

I had to go out in it on Sunday to take my grandmother to the cemetery and I noticed a blister on my arm that had been in the sun. That has never happened before but I am not so sure it's from the sun it might be a spider bit.

We are having major issues with our daughter and I can't do it anymore. Hubby has been on another level to. He's not sure if he will have a job at the end of summer and his brother is sick. He keeps everything inside and started having chest pains. So I have a grumpy hubby - I can't seem to do anything right or anything to please him. Then we have my daughter and that's a whole other can of worms.

I feel like crap and just want to run way.

I hope everyone is ok. Gus are you ok?

sending positive vibes and hugs to everyone
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Unread 06-19-2017, 11:36 PM   #323
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Default Re: The Fibromyalgia check in thread #3

Cake, I'm so sorry that you are having such a terrible time. I hope so much that things get better on all levels. Have you thought about having the Dr. check that blister in case it is a spider bite? They can be pretty dangerous. Take care of yourself as best you can in the middle of the chaos.

Today had been a very painful day. I even broke down and took a Coricidin Flu and it didn't help much. That's a first. I go to the Pain Specialist tomorrow. That will be my second foray out since I got sick with that Upper Respiratory thing. I would appreciate good thoughts and prayers that I have enough energy to do it. Pocket Riders are needed. Thanks all.
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Unread 06-20-2017, 05:45 AM   #324
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Default Re: The Fibromyalgia check in thread #3

Jan, tuck me in your pocket.

Cake, how about going someplace that has A/C to cool off a bit? Maybe hang out at the library or the mall? I understand your hubby's worry about possibly losing his job, but it doesn't make it okay to take it out on you. What would happen if you said something like"Hon, I know you are worried, but please don't snap at me."

Kiya, can I be a slug with you?

Still exhausted and hurting. I am getting sick of mentioning it. I feel like a broken record.

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Unread 06-20-2017, 05:49 AM   #325
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Default Re: The Fibromyalgia check in thread #3

Jan I will always be a pocket rider for you.


I see the rhemy today. I got into it with her assistant yesterday. My appointment wasn't till Wednesday. They had already changed it once. They called at 4 pm to change it again. They had a student called whoncould not even say my last name correctly which is an easy last name then he told me my appointment was to be changed and to hold for the assistant. Why couldn't the assistant just have called ? Why call and out me on hold like that? It was a power trip for her. The doctor was long gone for the day. I they wanted to give me an appointment in the hottest park of the day but I already have an appointment for this afternoon. It's with the vet and our vet is hard to get into and McGee needs his rabies shot since we have a wild fox running around in neighbors backyard. I need to protect him. I was not aware his had expired and it just expired. Once I heard about the fox I called to make an appointment. I could see one of the other vets but I wanted the vet ipwe have been going to for 22 years her first available appointment was today's 3:15 so I took it.

So it's 3:44 am I have opened the windows to get what cool air I could get in. But we have been having record temps. on days like this I don't usually leave the house heck I don't usually leave the house anyway anymore it's to hard.

I will have the doctor check my arm. The only thing it could be is a spider bite or a blister from the heat which some lupus patients get. If it is from the heat them I am in even bigger trouble with my lupus then before. To add to everything my breathing isn't to great and I a, sure my blood pressure is off the hook. Oh well I just can't win

Everyone take care. I miss you guys but it seems that all I do is complain and not encourage you guys which is not fair. I miss you guys.

Take care

Sending love and hugs

DeAnna
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Unread 06-20-2017, 05:57 AM   #326
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Default Re: The Fibromyalgia check in thread #3

Liz hubby needs to stop holding things in. He learned to do it at a very early age. If he didn't he got the crap beat out of him. It's surprising he turned into a kind loving person (most of the time). He mom (and I use that word loosely) is a witch. She had 4 kids by 4 different men. The only good thing is when baby daddy number 4 thought the best way to punish him for not putting his toys away (he was maybe 8 at the time ) was to burn him with a hot poker from the fire place. She sent him to go live with her parents. I am not sure if his sister came next or his brother. But the 3 oldest came to live with the grandparents until they graduated from high school. She kept the youngest with her who followed in her foot steps but she only had 3 children. Her youngest just graduated and the day after he graduated he moved in with my sister in law. His mom has been on public assistance since she first got pregnant at age 15. Considering her oldest child is 25 going on 26 she made it her career. Free rent money for food, cash and her gas and electric paid for all through welfare.

Ok I am done sorry guys.
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Unread 06-20-2017, 10:01 AM   #327
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Default Re: The Fibromyalgia check in thread #3



thank you for including me in your thoughts and prayers. it's been so hot here, too. yesterday was the worst yet. i dread a long hot summer, but i am supposed to get some home repairs done at a discount this year, so i look forward to that. if i can bring some small pleasure with my pictures, that is all i ask.

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Unread 06-20-2017, 06:21 PM   #328
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Default Re: The Fibromyalgia check in thread #3

Gus, your pics bring more than a "small measure" of pleasure. If I see you've posted to this thread I get excited to see what the newest picture is.

Cake, if hubby is snapping at you he isn't hold it in. He's holding it until it pops out as nastiness. I used to do the same.

It would pay me to watch the weather reports. There's a tropical storm sitting out in the Gulf bearing down on poor ol' Louisiana. They always trigger a flare for me. This is weird. It doesn't do anything to ease the pain or exhaustion, but I'm always relieved when I can identify what triggered a flare.
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Unread 06-20-2017, 07:41 PM   #329
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Default Re: The Fibromyalgia check in thread #3

The doc raised our gralise a few weeks ago,but we have to go back down cuz of side effects. The hope was pain relief and anxiety relief would be better... but it was causing some health problems and also probably some mood lability, from what I can find. I only mentioned the one thing, swelling of feet and legs, to the medical assistant, cuz it was all I knew for the timeline, but I googled today after getting the call back, and ya. I had taken the lower dose last night, since I knew the answer was going to be go back to the previous dose. And some of the otherr stuff is getting better (maybe not the right word) also.
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Unread 06-20-2017, 09:39 PM   #330
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Default Re: The Fibromyalgia check in thread #3

Cake, I agree with Liz. Hubby needs to treat you better. Being mean to you isn't going to solve any of his problems.

Gus, you bring us so much joy with your pictures. You really do!

Child, I'm sorry your med didn't work out for you and I hope you feel much better soon.

Thank you, one and all, for being Pocket Riders for me today. I held you dear to my heart. My visit went pretty well. I am not going to have to have more shots right into the spine for a while, but I have to have more shots in two other joints in my back. He's going to take heat and try to change the nerves in the joints. He's going to let me take PT just down the road instead of having to drive to the other place, which is a long, long drive. That part is very good.

Today Belle has been very naughty. She escaped twice and this is not the time she needs to be running around. Also, she jumped out of my arms and landed on her side on the cement. She's fine but she about scared me to death.

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