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Unread 03-19-2017, 01:02 AM   #921
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Quote:
Originally Posted by Mindful55 View Post
Been on PC for 3 years. I really wanted to post, then felt uncomfortable as my Fibromyalgia is not as painful as you.
Currently having IV Fusion monthly with magnesium for the fatigue & pain. Not perfect, but with the others mess..livable.
I felt the same sometimes, and also for me, I don't like to feel like I am complaining all the time. The way I was raised, I was taught that no one really cared. It's hard for me to grasp sometimes that people do actually care, irl treatment team (I cried in pdoc's office recently cuz I could see it in his eyes) and irl friends and even internet friends, who have never actually me, like y'all.

But please, always feel like you can post. There is pretty much always someone around.

Also, spoke to a friend with medical experience about the possible infection. I'm gonna get it looked at tomorrow, when I get back from the weekend road trip. Which will probably only add to the soreness... after spending probably 6 hours in car tomorrow, I get to go to the ER and have it looked at... yay...
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Unread 03-20-2017, 04:56 PM   #922
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Mindfulness, you are just as important as anyone here! Please feel free to post. We are one big family, and now you are part of it, too. I am so sorry you are hurting and that you have to take the IV's. Welcome, welcome!

Mindful, I'm so glad you are going to the E.R. to check that infection. You can't be too careful. I hope your road trip doesn't make you too sore. Please let us know what is going on with you.

Cake, I'm so glad to hear from you. Please don't let daughter abuse you. Save the texts from the boyfriend. Show them to the police. He can be arrested because of those texts. At the very least, you can get a protective order against him. I think you are doing the wise thing about daughter.

You are not a failure, hon. You truly are not. You are wrong about you. It's not your fault, Cake. It truly isn't. Listen to your head and not your guilt on this one. I know it's easily said and hard to do.

Please keep us posted as you can. I wish I was there with a big bat to protect you.

I, too, am very afraid of what's happening to our benefits. You are not alone.

I love you all. You are my family.
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Unread 03-20-2017, 10:45 PM   #923
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So the ER doc said the sutures were just really irritating it. Once those were out, it started looking a lot better.

Really really hurting today. PT tomorrow. Hoping he can help my shoulders or something. I don't know. Lower back hurts too, but neck and shoulders are stiff... hmph.

Also, saw pdoc today, not fun. Depressed with su feelings, and psychosis stuff... really don't wanna go IP but not sure if I can keep holding out like this...
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Unread 03-21-2017, 01:02 PM   #924
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Child, please do whatever it takes to keep you safe. You are very special and important.

I'm so glad you got the sutures out and your wound is looking much better.
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Unread 03-21-2017, 01:07 PM   #925
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I am trying. It seems like I'm fine earlier in the day, and then as the evening comes it get worse... the hard part is I feel trapped or locked up in IP which only makes things worse... if it came down to it, I would definitely go if you life depended on it tho.
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Unread 03-22-2017, 02:27 PM   #926
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Unread 03-22-2017, 06:28 PM   #927
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Been in near constant, horrible pain without any real relief since the end of November. Dealing with lots of stress which makes it all so much worse. (((Hugs))) to all of us suffering with physical or emotional pain and special (((((HUGS))))) for those dealing with both.
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Unread Yesterday, 05:08 PM   #928
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Quote:
Originally Posted by childofchaos831 View Post
I am trying. It seems like I'm fine earlier in the day, and then as the evening comes it get worse... the hard part is I feel trapped or locked up in IP which only makes things worse... if it came down to it, I would definitely go if you life depended on it tho.
Ditto. You're not alone!! Exact same with day being ok and nights being su thoughts. I also don't want to go in (or let people down) and I don't always want to be like this... having to tell t. Dunno what to do anymore. Hang on and ride it out I guess.
Lots of hugs and support!
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Unread Yesterday, 05:10 PM   #929
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((((( everyone in here!!!! 💖 )))))))
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Unread Yesterday, 06:31 PM   #930
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Hi Kiya 💜

Just got on..so much for flare ups..
Yesterday was nasusa and painful cramps..getting better.

Thank to all of you for the warm welcome 😋

I am grateful 💜
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